Our Little All-Star

Wow! What a couple of days. Sorry we've behind with the updating. While we were busy, Luke was busy getting used to his SiPap and improving each day. Then came today (Sunday)....

When we arrived today, his nurse told us that he had still been doing very well on his SiPap and she was able to have him at only 21% oxygen (room air), while he was on his left side. Then she said that at one point she had put him on his belly with his head facing to the left and after stepping away for a few minutes came back and found that our son, mr. muscles, had lifted his head AND his entire SiPap tube/mask apparatus and turned his head to the right. THEN...

After the 7pm break, we came back and his first night nurse, Lucy, let us give him his bath, change a VERY poopy diaper (again, Stacy did the hard work), take his temperature and she weighed and measured him. Then it was time for his 2-week change out of his isolette bed. Lucy said that she would take off the SiPap mask and let us hold him (off of all support) while she changed out the bed. We knew this moment would be brief, but wonderful being able to hold him without worrying about disturbing any breathing tubes, masks, etc. but had no idea it would go this well.

While we were holding him, having our moment, his nurse Lucy was amazed that he wasn't de-satting or showing any signs of distress after several minutes of being out and on no support. She then went and got one of the doctors and asked if they could try taking him off of the SiPap for awhile and go straight to what they call heated/blended which is warm, highly humidified oxygen (usually the last step before being off of breathing support entirely). The doctor took a look, said he looked good and that they would give it a shot. In the worst case, they would just have to put him back on SiPap - no big deal.

Much to our amazement and beaming happiness, one hour later there he was on a simple canula (little tubes in the nostrils) at at only 35% oxygen. As always, they forewarn us that he could always need to go back on the SiPap (and possibly even the ventilator), but so far, so good.
As I type this (around 11pm), we just called for another update and they said he's still doing well and they plan to keep him on it unless he shows any signs of needing to go back on the SiPap.

All in all an amazing day as Luke continues to show great improvement and we'll continue to hope and pray that he continues down this path of healing and hope you all will too.

We'll keep you posted as usual. Thanks everyone!