Family Meeting #3 Review

Today, Stacy and I had another family meeting with Luke's main doctor and one of his favorite nurses, Rhoda. There wasn't too much new information and it was mostly a recap of the great progress he has made in the last 7-10 days, particularly moving off of the ventilator which his doctor said is a HUGE step. They reminded us there is always a chance for setbacks, but that the longer he is on the SiPap, the less chance there is of going backwards.
He has continued to do well on the SiPap and is at fairly low oxygen levels. He still has his de-sat spells, which they think is more related now to some minor reflux issues with his feedings rather than apnea. They're going to try a bit of medicine called Regula (if that's how you spell it) which may or may not help with it so we'll see what happens. His weight has remained around the 2lb 7oz mark which they didn't seem too concerned about and they still expect to him start gaining again soon.
At the end of the meeting they kind of went over the main criteria for him going home, which is still at least several weeks away, but it was nice to at least hear the "H" word. While we'd obviously love to take him home soon, we're very patient and are OK with him being there as long as is needed to make him healthy.